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000147402 0247_ $$2ISSN$$a0941-3790
000147402 0247_ $$2ISSN$$a0949-7013
000147402 0247_ $$2ISSN$$a1439-4421
000147402 0247_ $$2ISSN$$a1615-5602
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000147402 037__ $$aDKFZ-2019-02519
000147402 041__ $$aeng
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000147402 1001_ $$0P:(DE-He78)d023fdf423d87ee6c710e34dd7581fa0$$aArndt, Volker$$b0$$eFirst author$$udkfz
000147402 245__ $$aData from Population-based Cancer Registration for Secondary Data Analysis: Methodological Challenges and Perspectives.
000147402 260__ $$aStuttgart [u.a.]$$bThieme$$c2020
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000147402 500__ $$a2020 Mar;82(S 01):S62-S71#EA:C071#
000147402 520__ $$aPopulation-based cancer registries have a long-standing role in cancer monitoring. Scientific use of cancer registry data is one important purpose of cancer registration, but use of cancer registry data is not restricted to cancer registries. Cancer registration in Germany is currently heading towards population-based collection of detailed clinical data. This development together with additional options for record linkage and long-term follow-up will offer new opportunities for health services and outcome research. Both regional population-based registries and the German Centre for Cancer Registry Data (ZfKD) at the Robert Koch-Institute as well as international cancer registries and consortia or organizations may provide external researchers access to individual or aggregate level data for secondary data analysis. In this review, we elaborate on the access to cancer registry data for research purposes, availability of specific data items, and options for data linkage with external data sources. We also discuss as well as on limitations in data availability and quality, and describe typical biases in design and analysis.
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000147402 7001_ $$aHolleczek, Bernd$$b1
000147402 7001_ $$aKajüter, Hiltraud$$b2
000147402 7001_ $$aLuttmann, Sabine$$b3
000147402 7001_ $$aNennecke, Alice$$b4
000147402 7001_ $$aZeissig, Sylke Ruth$$b5
000147402 7001_ $$aKraywinkel, Klaus$$b6
000147402 7001_ $$aKatalinic, Alexander$$b7
000147402 773__ $$0PERI:(DE-600)2056559-8$$a10.1055/a-1009-6466$$gp. a-1009-6466$$nS01$$pS62-S71$$tDas Gesundheitswesen$$v82$$x1439-4421$$y2020
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000147402 9141_ $$y2020
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