TY  - JOUR
AU  - Arndt, Volker
AU  - Holleczek, Bernd
AU  - Kajüter, Hiltraud
AU  - Luttmann, Sabine
AU  - Nennecke, Alice
AU  - Zeissig, Sylke Ruth
AU  - Kraywinkel, Klaus
AU  - Katalinic, Alexander
TI  - Data from Population-based Cancer Registration for Secondary Data Analysis: Methodological Challenges and Perspectives.
JO  - Das Gesundheitswesen
VL  - 82
IS  - S01
SN  - 1439-4421
CY  - Stuttgart [u.a.]
PB  - Thieme
M1  - DKFZ-2019-02519
SP  - S62-S71
PY  - 2020
N1  - 2020 Mar;82(S 01):S62-S71#EA:C071#
AB  - Population-based cancer registries have a long-standing role in cancer monitoring. Scientific use of cancer registry data is one important purpose of cancer registration, but use of cancer registry data is not restricted to cancer registries. Cancer registration in Germany is currently heading towards population-based collection of detailed clinical data. This development together with additional options for record linkage and long-term follow-up will offer new opportunities for health services and outcome research. Both regional population-based registries and the German Centre for Cancer Registry Data (ZfKD) at the Robert Koch-Institute as well as international cancer registries and consortia or organizations may provide external researchers access to individual or aggregate level data for secondary data analysis. In this review, we elaborate on the access to cancer registry data for research purposes, availability of specific data items, and options for data linkage with external data sources. We also discuss as well as on limitations in data availability and quality, and describe typical biases in design and analysis.
LB  - PUB:(DE-HGF)16
C6  - pmid:31663107
DO  - DOI:10.1055/a-1009-6466
UR  - https://inrepo02.dkfz.de/record/147402
ER  -