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@ARTICLE{Arndt:147402,
      author       = {V. Arndt$^*$ and B. Holleczek and H. Kajüter and S.
                      Luttmann and A. Nennecke and S. R. Zeissig and K. Kraywinkel
                      and A. Katalinic},
      title        = {{D}ata from {P}opulation-based {C}ancer {R}egistration for
                      {S}econdary {D}ata {A}nalysis: {M}ethodological {C}hallenges
                      and {P}erspectives.},
      journal      = {Das Gesundheitswesen},
      volume       = {82},
      number       = {S01},
      issn         = {1439-4421},
      address      = {Stuttgart [u.a.]},
      publisher    = {Thieme},
      reportid     = {DKFZ-2019-02519},
      pages        = {S62-S71},
      year         = {2020},
      note         = {2020 Mar;82(S 01):S62-S71#EA:C071#},
      abstract     = {Population-based cancer registries have a long-standing
                      role in cancer monitoring. Scientific use of cancer registry
                      data is one important purpose of cancer registration, but
                      use of cancer registry data is not restricted to cancer
                      registries. Cancer registration in Germany is currently
                      heading towards population-based collection of detailed
                      clinical data. This development together with additional
                      options for record linkage and long-term follow-up will
                      offer new opportunities for health services and outcome
                      research. Both regional population-based registries and the
                      German Centre for Cancer Registry Data (ZfKD) at the Robert
                      Koch-Institute as well as international cancer registries
                      and consortia or organizations may provide external
                      researchers access to individual or aggregate level data for
                      secondary data analysis. In this review, we elaborate on the
                      access to cancer registry data for research purposes,
                      availability of specific data items, and options for data
                      linkage with external data sources. We also discuss as well
                      as on limitations in data availability and quality, and
                      describe typical biases in design and analysis.},
      cin          = {M110 / C071},
      ddc          = {610},
      cid          = {I:(DE-He78)M110-20160331 / I:(DE-He78)C071-20160331},
      pnm          = {313 - Cancer risk factors and prevention (POF3-313)},
      pid          = {G:(DE-HGF)POF3-313},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:31663107},
      doi          = {10.1055/a-1009-6466},
      url          = {https://inrepo02.dkfz.de/record/147402},
}