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@ARTICLE{Jansen:148296,
      author       = {L. Jansen$^*$ and C. J. C. Schröder$^*$ and K. Emrich and
                      B. Holleczek and R. Pritzkuleit and H. Brenner$^*$},
      title        = {{D}isclosing progress in cancer survival with less delay.},
      journal      = {International journal of cancer},
      volume       = {147},
      number       = {3},
      issn         = {1097-0215},
      address      = {Bognor Regis},
      publisher    = {Wiley-Liss},
      reportid     = {DKFZ-2019-02860},
      pages        = {838-846},
      year         = {2020},
      note         = {2020 Aug 1;147(3):838-846#EA:C070#LA:C070#},
      abstract     = {Cancer registration plays a key role in monitoring the
                      burden of cancer. However, cancer registry (CR) data are
                      usually made available with substantial delay to ensure best
                      possible completeness of case ascertainment. Here, we
                      investigate empirically with routinely available data
                      whether such a delay is mandatory for survival analyses or
                      whether data can be used earlier to provide more up-to-date
                      survival estimates. We compared distributions of prognostic
                      factors and period relative survival estimates for three
                      population-based CRs in Germany (Schleswig-Holstein (SH),
                      Rhineland-Palatinate (RP), Saarland (SA)) computed on
                      datasets extracted one (DY+1) to five years after the year
                      of diagnosis (DY+5; reference). Analyses were conducted for
                      seven cancer sites and various survival analyses scenarios.
                      The proportion of patients registered in the datasets at a
                      given time varied strongly across registries with $57\%$
                      (SH), $2\%$ (RP) and $26\%$ (SA) registered in DY+1 and
                      $>93\%$ in all registries in DY+3. Five-year survival
                      estimates for the most recent three-year period were
                      comparable to estimates from the reference dataset already
                      in DY+1 (mean absolute $deviations=0.2-0.6\%$ units).
                      Deviations $>1\%$ units were only observed for pancreatic
                      and lung cancer in RP and leukemia in SA (all $≤1.5\%$
                      units). For estimates of one-year survival based on the most
                      recent one-year period only, slightly longer delays were
                      required, but reasonable estimates were still obtained after
                      one to two years, depending on the CR and cancer site. Thus,
                      progress in cancer survival could be disclosed in a more
                      timely manner than commonly practiced despite delays in
                      completeness of registration. This article is protected by
                      copyright. All rights reserved.},
      cin          = {C070 / C120 / HD01},
      ddc          = {610},
      cid          = {I:(DE-He78)C070-20160331 / I:(DE-He78)C120-20160331 /
                      I:(DE-He78)HD01-20160331},
      pnm          = {313 - Cancer risk factors and prevention (POF3-313)},
      pid          = {G:(DE-HGF)POF3-313},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:31785152},
      doi          = {10.1002/ijc.32816},
      url          = {https://inrepo02.dkfz.de/record/148296},
}