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@ARTICLE{Eklund:154638,
      author       = {N. Eklund and N. H. Andrianarisoa and E. van Enckevort and
                      G. Anton and A. Debucquoy and H. Müller and L. Zaharenko
                      and C. Engels and L. Ebert$^*$ and M. Neumann and J.
                      Geeraert and V. T'Joen and H. Demski and É. Caboux and R.
                      Proynova$^*$ and B. Parodi and S. Mate and E. van Iperen and
                      R. Merino-Martinez and P. R. Quinlan and P. Holub and K.
                      Silander},
      title        = {{E}xtending the {M}inimum {I}nformation {A}bout {BI}obank
                      {D}ata {S}haring {T}erminology to {D}escribe {S}amples,
                      {S}ample {D}onors, and {E}vents.},
      journal      = {Biopreservation and biobanking},
      volume       = {18},
      number       = {3},
      issn         = {1947-5543},
      address      = {New Rochelle, NY},
      publisher    = {Liebert},
      reportid     = {DKFZ-2020-00905},
      pages        = {155-164},
      year         = {2020},
      note         = {2020 Jun;18(3):155-164},
      abstract     = {Introduction: The Minimum Information About BIobank data
                      Sharing (MIABIS) was initiated in 2012. MIABIS aims to
                      create a common biobank terminology to facilitate data
                      sharing in biobanks and sample collections. The MIABIS Core
                      terminology consists of three components describing
                      biobanks, sample collections, and studies, in which
                      information on samples and sample donors is provided at
                      aggregated form. However, there is also a need to describe
                      samples and sample donors at an individual level to allow
                      more elaborate queries on available biobank samples and
                      data. Therefore the MIABIS terminology has now been extended
                      with components describing samples and sample donors at an
                      individual level. Materials and Methods: The components were
                      defined according to specific scope and use cases by a large
                      group of experts, and through several cycles of reviews,
                      according to the new MIABIS governance model of BBMRI-ERIC
                      (Biobanking and Biomolecular Resources Research
                      Infrastructure-European Research Infrastructure Consortium).
                      The guiding principles applied in developing these
                      components included the following terms: model should
                      consider only samples of human origin, model should be
                      applicable to all types of samples and all sample donors,
                      and model should describe the current status of samples
                      stored in a given biobank. Results: A minimal set of
                      standard attributes for defining samples and sample donors
                      is presented here. We added an 'event' component to describe
                      attributes that are not directly describing samples or
                      sample donors but are tightly related to them. To better
                      utilize the generic data model, we suggest a procedure by
                      which interoperability can be promoted, using specific
                      MIABIS profiles. Discussion: The MIABIS sample and donor
                      component extensions and the new generic data model
                      complement the existing MIABIS Core 2.0 components, and
                      substantially increase the potential usability of this
                      terminology for better describing biobank samples and sample
                      donors. They also support the use of individual level data
                      about samples and sample donors to obtain accurate and
                      detailed biobank availability queries.},
      cin          = {E260},
      ddc          = {610},
      cid          = {I:(DE-He78)E260-20160331},
      pnm          = {315 - Imaging and radiooncology (POF3-315)},
      pid          = {G:(DE-HGF)POF3-315},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:32302498},
      doi          = {10.1089/bio.2019.0129},
      url          = {https://inrepo02.dkfz.de/record/154638},
}