TY  - JOUR
AU  - Proynova, Rumyana
AU  - Alexandre, Diogo
AU  - Lablans, Martin
AU  - Van Enckevort, David
AU  - Mate, Sebastian
AU  - Eklund, Niina
AU  - Silander, Kaisa
AU  - Hummel, Michael
AU  - Holub, Petr
AU  - Ückert, Frank
TI  - A Decentralized IT Architecture for Locating and Negotiating Access to Biobank Samples.
JO  - Studies in health technology and informatics
VL  - 243
SN  - 0926-9630
CY  - Amsterdam
PB  - IOS Press
M1  - DKFZ-2020-02539
SP  - 75-79
PY  - 2017
N1  - POF Topic: 317
AB  - There is a need among researchers for the easy discoverability of biobank samples. Currently, there is no uniform way for finding samples and negotiate access. Instead, researchers have to communicate with each biobank separately. We present the architecture for the BBMRI-CS IT platform, whose goal is to facilitate sample location and access. We chose a decentral approach, which allows for strong data protection and provides the high flexibility needed in the highly heterogeneous landscape of European biobanks. This is the first implementation of a decentral search in the biobank field. With the addition of a Negotiator component, it also allows for easy communication and a follow-through of the lengthy approval process for accessing samples.
KW  - Access to Information
KW  - Biological Specimen Banks
KW  - Databases, Factual
KW  - Negotiating
LB  - PUB:(DE-HGF)16
C6  - pmid:28883174
DO  - DOI:10.3233/978-1-61499-808-2-75
UR  - https://inrepo02.dkfz.de/record/166000
ER  -