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@ARTICLE{Proynova:166000,
author = {R. Proynova$^*$ and D. Alexandre$^*$ and M. Lablans$^*$ and
D. Van Enckevort and S. Mate and N. Eklund and K. Silander
and M. Hummel and P. Holub and F. Ückert$^*$},
title = {{A} {D}ecentralized {IT} {A}rchitecture for {L}ocating and
{N}egotiating {A}ccess to {B}iobank {S}amples.},
journal = {Studies in health technology and informatics},
volume = {243},
issn = {0926-9630},
address = {Amsterdam},
publisher = {IOS Press},
reportid = {DKFZ-2020-02539},
pages = {75-79},
year = {2017},
note = {POF Topic: 317},
abstract = {There is a need among researchers for the easy
discoverability of biobank samples. Currently, there is no
uniform way for finding samples and negotiate access.
Instead, researchers have to communicate with each biobank
separately. We present the architecture for the BBMRI-CS IT
platform, whose goal is to facilitate sample location and
access. We chose a decentral approach, which allows for
strong data protection and provides the high flexibility
needed in the highly heterogeneous landscape of European
biobanks. This is the first implementation of a decentral
search in the biobank field. With the addition of a
Negotiator component, it also allows for easy communication
and a follow-through of the lengthy approval process for
accessing samples.},
keywords = {Access to Information / Biological Specimen Banks /
Databases, Factual / Negotiating},
cin = {G230 / M130},
ddc = {300},
cid = {I:(DE-He78)G230-20160331 / I:(DE-He78)M130-20160331},
pnm = {317 - Translational cancer research (POF3-317)},
pid = {G:(DE-HGF)POF3-317},
typ = {PUB:(DE-HGF)16},
pubmed = {pmid:28883174},
doi = {10.3233/978-1-61499-808-2-75},
url = {https://inrepo02.dkfz.de/record/166000},
}