TY  - JOUR
AU  - Wiedekopf, Joshua
AU  - Ulrich, Hannes
AU  - Essenwanger, Andrea
AU  - Kiel, Alexander
AU  - Kock-Schoppenhauer, Ann-Kristin
AU  - Ingenerf, Josef
TI  - Desiderata for a Synthetic Clinical Data Generator.
JO  - Studies in health technology and informatics
VL  - 281
SN  - 0926-9630
CY  - Amsterdam
PB  - IOS Press
M1  - DKFZ-2021-01177
SN  - 9781643681849 (print)
SP  - 68-72
PY  - 2021
AB  - The current movement in Medical Informatics towards comprehensive Electronic Health Records (EHRs) has enabled a wide range of secondary use cases for this data. However, due to a number of well-justified concerns and barriers, especially with regards to information privacy, access to real medical records by researchers is often not possible, and indeed not always required. An appealing alternative to the use of real patient data is the employment of a generator for realistic, yet synthetic, EHRs. However, we have identified a number of shortcomings in prior works, especially with regards to the adaptability of the projects to the requirements of the German healthcare system. Based on three case studies, we define a non-exhaustive list of requirements for an ideal generator project that can be used in a wide range of localities and settings, to address and enable future work in this regard.
KW  - RS-EHR (Other)
KW  - Realistic Synthetic Electronic Health Records (Other)
KW  - Requirements (Other)
KW  - Secondary Use (Other)
KW  - Synthetic Data (Other)
LB  - PUB:(DE-HGF)3 ; PUB:(DE-HGF)16
C6  - pmid:34042707
DO  - DOI:10.3233/SHTI210122
UR  - https://inrepo02.dkfz.de/record/168981
ER  -