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000178816 0247_ $$2ISSN$$a1433-7339
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000178816 041__ $$aEnglish
000178816 082__ $$a610
000178816 1001_ $$0P:(DE-He78)2def8f8594c8f797f5ed4398258c6cac$$aSchmidt, Martina$$b0$$eFirst author$$udkfz
000178816 245__ $$aCancer-related fatigue: benefits of information booklets to improve patients' knowledge and empowerment.
000178816 260__ $$aNew York,NY$$bSpringer$$c2022
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000178816 500__ $$a#EA:C110#LA:C110# /  2022 Jun;30(6):4813-4821
000178816 520__ $$aTo investigate cancer patients' knowledge and attitudes regarding fatigue and the potential benefits and acceptability of a brief information booklet.The CARPE DIEM study assessed knowledge and attitudes regarding fatigue in a diverse group of 50 cancer patients before (T0) and about one (T1) and four months (T2) after reading the booklet. At T1, participants additionally rated its usefulness.At baseline, 37.5% of respondents did not know the term 'fatigue' or what it meant. Those who already knew something about fatigue mainly had obtained their information from booklets, books, or articles (63.3%) and/or the internet (46.7%). Overall, knowledge gaps existed, particularly about potential fatigue treatment options and whether fatigue is an indicator of cancer progression. Furthermore, 56.4% felt poorly informed, and 46.1% reported feeling helpless in the face of fatigue. Lower knowledge at baseline was significantly associated with lower education and older age. At T1 and T2, there were significant improvements in several knowledge questions and attitudes. Patient-reported benefits included getting new information about fatigue (91.1%), awareness of not being alone with their problems (89.7%), taking appropriate actions (72.9%), and encouragement to talk about their fatigue with family/friends (55.3%) or with a health professional (52.7%).Specific gaps were identified in the provision of information and education for cancer patients about fatigue. A low-cost intervention asking to read a brief information booklet was associated with improved knowledge. This could be considered as a first step offered as part of a bundle of further efforts to improve knowledge and care of fatigue.
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000178816 650_7 $$2Other$$aCancer survivorship
000178816 650_7 $$2Other$$aFatigue management
000178816 650_7 $$2Other$$aHealth literacy
000178816 650_7 $$2Other$$aPamphlets
000178816 650_7 $$2Other$$aPatient education
000178816 650_7 $$2Other$$aQuality of life
000178816 7001_ $$0P:(DE-He78)4efdb2a34deea12413d61f7ddc9eba99$$aMilzer, Marlena$$b1$$udkfz
000178816 7001_ $$0P:(DE-He78)341d19c6873aeda9d1e61bf4be7d2f4e$$aWeiß, Cécile$$b2
000178816 7001_ $$0P:(DE-He78)2fea027fd35806305cdce65acd02d607$$aReinke, Paul$$b3$$udkfz
000178816 7001_ $$00000-0003-3837-0931$$aGrapp, Miriam$$b4
000178816 7001_ $$0P:(DE-He78)a0c2037d9054be26907a05ae520d5756$$aSteindorf, Karen$$b5$$eLast author$$udkfz
000178816 773__ $$0PERI:(DE-600)1463166-0$$a10.1007/s00520-022-06833-w$$n6$$p4813-4821$$tSupportive care in cancer$$v30$$x0941-4355$$y2022
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