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000179959 1001_ $$aKlotz, Rosa$$b0
000179959 245__ $$aTop 10 research priorities in colorectal cancer: results from the Colorectal Cancer Priority-Setting Partnership.
000179959 260__ $$aBerlin$$bSpringer$$c2023
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000179959 500__ $$a2023 Apr;149(4):1561-1568
000179959 520__ $$aColorectal cancer (CRC) is the third most frequent cause of cancer death in the word. Which aspects of research into CRC should be accorded the highest priority remains unclear, because relevant stakeholders, such as patients, nurses, and physicians, played hardly any part in the development of research projects. The goal in forming the CRC Priority-Setting Partnership (PSP) was to bring all relevant stakeholders together to identify and prioritize unresolved research questions regarding the diagnosis, treatment, and follow-up of CRC.The CRC PSP worked in cooperation with the British James Lind Alliance. An initial nationwide survey was conducted, and evidence uncertainties were collected, categorized, summarized, and compared with available evidence from the literature. The as-yet unresolved questions were (provisionally) ranked in a second national wide survey, and at a concluding consensus workshop all stakeholders came together to finalize the rankings in a nominal group process and compile a top 10 list.In the first survey (34% patients, 51% healthcare professionals, 15% unknown), 1102 submissions were made. After exclusion of duplicates and previously resolved questions, 66 topics were then ranked in the second survey (56% patients, 39% healthcare professionals, 5% unknown). This interim ranking process revealed distinct differences between relatives and healthcare professionals. The final top 10 list compiled at the consensus workshop covers a wide area of research topics.All relevant stakeholders in the CRC PSP worked together to identify and prioritize the top 10 evidence uncertainties. The results give researchers and funding bodies the opportunity to address the most patient-relevant research projects. It is the first detailed description of a PSP in Germany, and the first PSP on CRC care worldwide.
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000179959 650_7 $$2Other$$aColorectal neoplasms
000179959 650_7 $$2Other$$aForschungspartnerschaft
000179959 650_7 $$2Other$$aPatient participation
000179959 650_7 $$2Other$$aPriority-Setting Partnership
000179959 7001_ $$aHolze, Magdalena$$b1
000179959 7001_ $$aDörr-Harim, Colette$$b2
000179959 7001_ $$aGrohmann, Erich$$b3
000179959 7001_ $$aNied, Barbara$$b4
000179959 7001_ $$aLebert, Burkhard$$b5
000179959 7001_ $$0P:(DE-He78)76dcc66f81ef265e1968a39c42318846$$aWeg-Remers, Susanne$$b6$$udkfz
000179959 7001_ $$aLutz, Claudia$$b7
000179959 7001_ $$aMeißler, Karin$$b8
000179959 7001_ $$aSchloss, Patrick$$b9
000179959 7001_ $$aUllrich, Charlotte$$b10
000179959 7001_ $$aFrankenhauser, Susanne$$b11
000179959 7001_ $$aLutter, Heidi$$b12
000179959 7001_ $$aBühler, Diedrich$$b13
000179959 7001_ $$aAhmed, Azaz$$b14
000179959 7001_ $$aGronlund, Toto$$b15
000179959 7001_ $$00000-0003-1902-657X$$aMihaljevic, André L$$b16
000179959 7001_ $$aDarmkrebs, Forschungspartnerschaft$$b17$$eCollaboration Author
000179959 7001_ $$aCancer, Steering Group Forschungspartnerschaft Darmkrebs/Priority Setting Colorectal$$b18$$eCollaboration Author
000179959 7001_ $$aMihaljevic, André$$b19
000179959 7001_ $$aKlotz, Rosa$$b20
000179959 7001_ $$aDörr-Harim, Colette$$b21
000179959 7001_ $$aBühler, Diedrich$$b22
000179959 7001_ $$aDörr-Harim, Colette$$b23
000179959 7001_ $$aFrankenhauser, Susanne$$b24
000179959 7001_ $$aGapp-Frasch, Sylvia$$b25
000179959 7001_ $$aGrohmann, Erich$$b26
000179959 7001_ $$aHelmstädter, Volker$$b27
000179959 7001_ $$aHey, Christa$$b28
000179959 7001_ $$aHey, Werner$$b29
000179959 7001_ $$aKlotz, Rosa$$b30
000179959 7001_ $$aMihaljevic, André$$b31
000179959 7001_ $$aLebert, Burkhard$$b32
000179959 7001_ $$aLutz, Claudia$$b33
000179959 7001_ $$aLutter, Heidi$$b34
000179959 7001_ $$aLutz, Claudia$$b35
000179959 7001_ $$aMeißler, Karin$$b36
000179959 7001_ $$aNied, Barbara$$b37
000179959 7001_ $$aSchloss, Patrick$$b38
000179959 7001_ $$aStegmüller, Susanne$$b39
000179959 7001_ $$aStünzi, Peter$$b40
000179959 7001_ $$aTrabold-Hauk, Angelika$$b41
000179959 7001_ $$aUllrich, Charlotte$$b42
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000179959 7001_ $$aWensing, Michel$$b44
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