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@ARTICLE{Giusti:274203,
      author       = {F. Giusti and C. Martos and A. Trama and M. Bettio and A.
                      Sanvisens and R. Audisio and V. Arndt$^*$ and S. Francisci
                      and C. Dochez and J. Ribes and L. P. Fernández and A. Gavin
                      and G. Gatta and R. Marcos-Gragera and Y. Lievens and C.
                      Allemani and R. De Angelis and O. Visser and L. Van Eycken},
      collaboration = {E. W. G. o. T. D. Harmonisation},
      title        = {{C}ancer treatment data available in {E}uropean cancer
                      registries: {W}here are we and where are we going?},
      journal      = {Frontiers in oncology},
      volume       = {13},
      issn         = {2234-943X},
      address      = {Lausanne},
      publisher    = {Frontiers Media},
      reportid     = {DKFZ-2023-00489},
      pages        = {1109978},
      year         = {2023},
      abstract     = {Population-based cancer registries are responsible for
                      collecting incidence and survival data on all reportable
                      neoplasms within a defined geographical area. During the
                      last decades, the role of cancer registries has evolved
                      beyond monitoring epidemiological indicators, as they are
                      expanding their activities to studies on cancer aetiology,
                      prevention, and quality of care. This expansion relies also
                      on the collection of additional clinical data, such as stage
                      at diagnosis and cancer treatment. While the collection of
                      data on stage, according to international reference
                      classification, is consolidated almost everywhere, data
                      collection on treatment is still very heterogeneous in
                      Europe. This article combines data from a literature review
                      and conference proceedings together with data from 125
                      European cancer registries contributing to the 2015 ENCR-JRC
                      data call to provide an overview of the status of using and
                      reporting treatment data in population-based cancer
                      registries. The literature review shows that there is an
                      increase in published data on cancer treatment by
                      population-based cancer registries over the years. In
                      addition, the review indicates that treatment data are most
                      often collected for breast cancer, the most frequent cancer
                      in women in Europe, followed by colorectal, prostate and
                      lung cancers, which are also more common. Treatment data are
                      increasingly being reported by cancer registries, though
                      further improvements are required to ensure their complete
                      and harmonised collection. Sufficient financial and human
                      resources are needed to collect and analyse treatment data.
                      Clear registration guidelines are to be made available to
                      increase the availability of real-world treatment data in a
                      harmonised way across Europe.},
      keywords     = {Europe (Other) / big data (Other) / cancer registry (Other)
                      / cancer registry data (Other) / cancer treament (Other) /
                      data harmonisation (Other) / questionnaire (Other)},
      cin          = {M110 / C071},
      ddc          = {610},
      cid          = {I:(DE-He78)M110-20160331 / I:(DE-He78)C071-20160331},
      pnm          = {313 - Krebsrisikofaktoren und Prävention (POF4-313)},
      pid          = {G:(DE-HGF)POF4-313},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:36845700},
      pmc          = {pmc:PMC9944949},
      doi          = {10.3389/fonc.2023.1109978},
      url          = {https://inrepo02.dkfz.de/record/274203},
}