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@ARTICLE{Trefzer:278633,
author = {L. Trefzer and M. E. Hess and L. Scholten and K.
Technau-Hafsi and F. Meiss and M. Börries$^*$ and C. Has
and D. Rafei-Shamsabadi},
title = {{V}ariable {O}utcome of {I}mmunotherapy in {A}dvanced
{M}ultiple {C}utaneous {S}quamous {C}ell {C}arcinomas in
{T}wo {P}atients with {R}ecessive {D}ystrophic
{E}pidermolysis {B}ullosa.},
journal = {Acta dermato-venereologica},
volume = {103},
issn = {0001-5555},
address = {Uppsala},
publisher = {Acta Dermato-Venereologica},
reportid = {DKFZ-2023-01677},
pages = {adv4870},
year = {2023},
abstract = {Cutaneous squamous cell carcinoma (cSCC) is a major
complication of recessive dystrophic epidermolysis bullosa
(RDEB) that has high morbidity and mortality rates and unmet
therapeutic needs. The aim of this study was to evaluate the
molecular pattern of cSCC and the clinical course of
immunotherapy in 2 RDEB patients with multiple advanced
cSCC. Clinical course and disease staging were evaluated
retrospectively. The tumour tissues were subjected to
immunohistochemical staining. DNA from the blood and cSCC
samples was subjected to massive parallel sequencing, and
somatic mutations were determined. Patient 1 survived for
over 2 years as disease control was achieved with cemiplimab
and intralesional interleukin-2. The target advanced cSCC
demonstrated a high rate of somatic mutations and strong
expression of the immune markers, indoleamine
2,3-dioxygenase, programmed cell death protein ligand 1, and
lymphocyte-activation gene 3. The patient ultimately
succumbed to complications of oesophageal carcinoma. Patient
2 had an undifferentiated cSCC on the foot, which displayed
a low mutational burden and did not express immune markers.
The tumour progressed quickly even with cemiplimab therapy.
These 2 cases underscore the challenges of cSCC treatment
for RDEB. Multiple tumours with different molecular and
immune profiles occur concomitantly or sequentially, and
surgical excision is not always possible because of the
anatomical and tissue constraints imposed by the disease
itself. In conclusion, programmed cell death protein 1
inhibitors are approved and effective in treating metastatic
and locally advanced cSCC. Our experience and the literature
suggest that cemiplimab is an option in patients with RDEB
if surgery is not. Somatic mutations and the immune
microenvironment should be characterized to predict
therapeutic response, particularly in aggressive
undifferentiated tumours.},
keywords = {Humans / Skin Neoplasms: drug therapy / Skin Neoplasms:
genetics / Carcinoma, Squamous Cell: drug therapy /
Carcinoma, Squamous Cell: genetics / Epidermolysis Bullosa
Dystrophica: complications / Epidermolysis Bullosa
Dystrophica: drug therapy / Epidermolysis Bullosa
Dystrophica: genetics / Retrospective Studies /
Immunotherapy: adverse effects / Disease Progression / Tumor
Microenvironment},
cin = {FR01},
ddc = {610},
cid = {I:(DE-He78)FR01-20160331},
pnm = {899 - ohne Topic (POF4-899)},
pid = {G:(DE-HGF)POF4-899},
typ = {PUB:(DE-HGF)16},
pubmed = {pmid:37338146},
pmc = {pmc:PMC10292046},
doi = {10.2340/actadv.v103.4870},
url = {https://inrepo02.dkfz.de/record/278633},
}