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000285961 245__ $$aChronic disease outcome metadata from German observational studies - public availability and FAIR principles.
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000285961 520__ $$aMetadata from epidemiological studies, including chronic disease outcome metadata (CDOM), are important to be findable to allow interpretability and reusability. We propose a comprehensive metadata schema and used it to assess public availability and findability of CDOM from German population-based observational studies participating in the consortium National Research Data Infrastructure for Personal Health Data (NFDI4Health). Additionally, principal investigators from the included studies completed a checklist evaluating consistency with FAIR principles (Findability, Accessibility, Interoperability, Reusability) within their studies. Overall, six of sixteen studies had complete publicly available CDOM. The most frequent CDOM source was scientific publications and the most frequently missing metadata were availability of codes of the International Classification of Diseases, Tenth Revision (ICD-10). Principal investigators' main perceived barriers for consistency with FAIR principles were limited human and financial resources. Our results reveal that CDOM from German population-based studies have incomplete availability and limited findability. There is a need to make CDOM publicly available in searchable platforms or metadata catalogues to improve their FAIRness, which requires human and financial resources.
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000285961 7001_ $$aNimptsch, Katharina$$b1
000285961 7001_ $$aAhrens, Wolfgang$$b2
000285961 7001_ $$aHasselhorn, Hans Martin$$b3
000285961 7001_ $$aJöckel, Karl-Heinz$$b4
000285961 7001_ $$0P:(DE-He78)fb68a9386399d72d84f7f34cfc6048b4$$aKatzke, Verena$$b5$$udkfz
000285961 7001_ $$aKluttig, Alexander$$b6
000285961 7001_ $$aLinkohr, Birgit$$b7
000285961 7001_ $$aMikolajczyk, Rafael$$b8
000285961 7001_ $$aNöthlings, Ute$$b9
000285961 7001_ $$aPerrar, Ines$$b10
000285961 7001_ $$aPeters, Annette$$b11
000285961 7001_ $$aSchmidt, Carsten O$$b12
000285961 7001_ $$aSchmidt, Börge$$b13
000285961 7001_ $$00000-0002-0830-5277$$aSchulze, Matthias B$$b14
000285961 7001_ $$aStang, Andreas$$b15
000285961 7001_ $$aZeeb, Hajo$$b16
000285961 7001_ $$aPischon, Tobias$$b17
000285961 773__ $$0PERI:(DE-600)2775191-0$$a10.1038/s41597-023-02726-7$$gVol. 10, no. 1, p. 868$$n1$$p868$$tScientific data$$v10$$x2052-4436$$y2023
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