%0 Journal Article
%A Wang, Yan
%A Allsop, Matthew J
%A Epstein, Joel B
%A Howell, Doris
%A Rapoport, Bernardo L
%A Schofield, Penelope
%A Van Sebille, Ysabella
%A Thong, Melissa
%A Walraven, Iris
%A Ryan Wolf, Julie
%A van den Hurk, Corina J G
%T Patient-reported symptom monitoring: using (big) data to improve supportive care at the macro-, meso-, and micro-levels.
%J Supportive care in cancer
%V 32
%N 3
%@ 0941-4355
%C New York,NY
%I Springer
%M DKFZ-2024-00403
%P 182
%D 2024
%X This paper aims to provide a comprehensive understanding of the need for continued development of symptom monitoring (SM) implementation, utilization, and data usage at the macro-, meso-, and micro-levels.Discussions from a patient-reported SM workshop at the MASCC/ISSO 2022 annual meeting were analyzed using a macro-meso-micro analytical framework of cancer care delivery. The workshop categories 'initiation and implementation, barriers to adoption and utilization, and data usage' were integrated for each level.At the macro-level, policy development could encourage data sharing and international collaboration, including the exchange of SM methods, supportive care models, and self-management modules. At the meso-level, institutions should adjust clinical workflow and service delivery and promote a thorough technical and clinical integration of SM. At the micro-level, SM should be individualized, with timely feedback for patients, and should foster trust and understanding of AI decision support tools amongst clinicians to improve supportive care.The workshop reached a consensus among international experts on providing guidance on SM implementation, utilization, and (big) data usage pathways in cancer survivors across the cancer continuum and on macro-meso-micro levels.
%K Humans
%K Cancer Survivors
%K Cognition
%K Consensus
%K Information Dissemination
%K Patient Reported Outcome Measures
%K Real-world data (Other)
%K Supportive care (Other)
%K Symptom monitoring (Other)
%F PUB:(DE-HGF)16
%9 Journal Article
%$ pmid:38386101
%R 10.1007/s00520-024-08373-x
%U https://inrepo02.dkfz.de/record/288539