TY  - JOUR
AU  - Wang, Yan
AU  - Allsop, Matthew J
AU  - Epstein, Joel B
AU  - Howell, Doris
AU  - Rapoport, Bernardo L
AU  - Schofield, Penelope
AU  - Van Sebille, Ysabella
AU  - Thong, Melissa
AU  - Walraven, Iris
AU  - Ryan Wolf, Julie
AU  - van den Hurk, Corina J G
TI  - Patient-reported symptom monitoring: using (big) data to improve supportive care at the macro-, meso-, and micro-levels.
JO  - Supportive care in cancer
VL  - 32
IS  - 3
SN  - 0941-4355
CY  - New York,NY
PB  - Springer
M1  - DKFZ-2024-00403
SP  - 182
PY  - 2024
AB  - This paper aims to provide a comprehensive understanding of the need for continued development of symptom monitoring (SM) implementation, utilization, and data usage at the macro-, meso-, and micro-levels.Discussions from a patient-reported SM workshop at the MASCC/ISSO 2022 annual meeting were analyzed using a macro-meso-micro analytical framework of cancer care delivery. The workshop categories 'initiation and implementation, barriers to adoption and utilization, and data usage' were integrated for each level.At the macro-level, policy development could encourage data sharing and international collaboration, including the exchange of SM methods, supportive care models, and self-management modules. At the meso-level, institutions should adjust clinical workflow and service delivery and promote a thorough technical and clinical integration of SM. At the micro-level, SM should be individualized, with timely feedback for patients, and should foster trust and understanding of AI decision support tools amongst clinicians to improve supportive care.The workshop reached a consensus among international experts on providing guidance on SM implementation, utilization, and (big) data usage pathways in cancer survivors across the cancer continuum and on macro-meso-micro levels.
KW  - Humans
KW  - Cancer Survivors
KW  - Cognition
KW  - Consensus
KW  - Information Dissemination
KW  - Patient Reported Outcome Measures
KW  - Real-world data (Other)
KW  - Supportive care (Other)
KW  - Symptom monitoring (Other)
LB  - PUB:(DE-HGF)16
C6  - pmid:38386101
DO  - DOI:10.1007/s00520-024-08373-x
UR  - https://inrepo02.dkfz.de/record/288539
ER  -