TY  - JOUR
AU  - Schlander, Michael
AU  - van Harten, Wim
AU  - Retèl, Valesca P
AU  - Pham, Phu Duy
AU  - Vancoppenolle, Julie M
AU  - Ubels, Jasper
AU  - López, Olaya Seoane
AU  - Quirland, Camila
AU  - Maza, Felipe
AU  - Aas, Eline
AU  - Crusius, Bernd
AU  - Escobedo, Agustín
AU  - Franzen, Nora
AU  - Fuentes-Cid, Jeanette
AU  - Hernandez, Diego
AU  - Hernandez-Villafuerte, Karla
AU  - Kirac, Iva
AU  - Paty, Artus
AU  - Philip, Thierry
AU  - Smeland, Sigbjørn
AU  - Sullivan, Richard
AU  - Vanni, Elena
AU  - Varga, Sinisa
AU  - Vermeulin, Thomas
AU  - Eckford, Rachel
TI  - The socioeconomic impact of cancer on patients and their relatives: Organisation of European Cancer Institutes task force consensus recommendations on conceptual framework, taxonomy, and research directions.
JO  - The lancet / Oncology
VL  - 25
IS  - 4
SN  - 1470-2045
CY  - London
PB  - The Lancet Publ. Group
M1  - DKFZ-2024-00625
SP  - e152 - e163
PY  - 2024
N1  - #EA:C100#LA:C100#
AB  - Loss of income and out-of-pocket expenditures are important causes of financial hardship in many patients with cancer, even in high-income countries. The far-reaching consequences extend beyond the patients themselves to their relatives, including caregivers and dependents. European research to date has been limited and is hampered by the absence of a coherent theoretical framework and by heterogeneous methods and terminology. To address these shortages, a task force initiated by the Organisation of European Cancer Institutes (OECI) produced 25 recommendations, including a comprehensive definition of socioeconomic impact from the perspective of patients and their relatives, a conceptual framework, and a consistent taxonomy linked to the framework. The OECI task force consensus statement highlights directions for future research with a view towards policy relevance. Beyond descriptive studies into the dimension of the problem, individual severity and predictors of vulnerability should be explored. It is anticipated that the consensus recommendations will facilitate and enhance future research efforts into the socioeconomic impact of cancer and cancer care, providing a crucial reference point for the development and validation of patient-reported outcome instruments aimed at measuring its broader effects.
KW  - Humans
KW  - Neoplasms: epidemiology
KW  - Neoplasms: therapy
KW  - Academies and Institutes
KW  - Consensus
KW  - Socioeconomic Factors
LB  - PUB:(DE-HGF)16
C6  - pmid:38547899
DO  - DOI:10.1016/S1470-2045(23)00636-8
UR  - https://inrepo02.dkfz.de/record/289191
ER  -