TY - JOUR AU - Allard, Pierre AU - Tagliaferri, Laura AU - Weru, Vivienn AU - Cario, Holger AU - Lobitz, Stephan AU - Grosse, Regine AU - Bleeke, Matthias AU - Oevermann, Lena AU - Hakimeh, Dani AU - Jarisch, Andrea AU - Kopp-Schneider, Annette AU - Kulozik, Andreas E AU - Kunz, Joachim B TI - The German sickle cell disease registry reveals a surprising risk of acute splenic sequestration and an increased transfusion requirement in patients with compound heterozygous sickle cell disease HbS/β-thalassaemia and no or low HbA expression. JO - European journal of haematology VL - 113 IS - 4 SN - 0902-4441 CY - Oxford PB - Wiley-Blackwell M1 - DKFZ-2024-01402 SP - 501-509 PY - 2024 N1 - 2024 Oct;113(4):501-509 AB - Patients with sickle cell disease (SCD) in Germany exhibit a substantial genetic diversity in the β-globin genotype. Data collected by the national German SCD registry reflect this diversity and allowed us to analyze the phenotypes associated with different SCD genotypes. Our study focused on 90 patients with HbS/β-thalassaemia (HbS/β-thal) and compared these to patients with HbSS and HbSC. Patients with HbS/β-thal were classified into three groups: HbS/β0-thal (no HbA), HbS/β+-thal (HbA < 14 KW - anemia (Other) KW - sickle cell (Other) KW - thalassemia (Other) LB - PUB:(DE-HGF)16 C6 - pmid:38946051 DO - DOI:10.1111/ejh.14259 UR - https://inrepo02.dkfz.de/record/291428 ER -