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@ARTICLE{AmatFernandez:298200,
      author       = {C. Amat-Fernandez and O. Garin and R. Luer-Aguila and Y.
                      Pardo and R. Briseño and C. Lizano-Barrantes and L.
                      Rojas-Concha and M. Thong$^*$ and G. Apolone and C. Brunelli
                      and A. Caraceni and N. Couespel and N. Bos and M. Groenvold
                      and S. Kaasa and G. Ciliberto and C. Lombardo and R.
                      Pietrobon and G. Pravettoni and A. Sirven and H. Vachon and
                      A. Gilbert and G. Velikova and M. Ferrer},
      collaboration = {E. W. Group},
      othercontributors = {M. Costantini and M. Pe and C. Marzorati and A. Tanzilli
                          and M. A. Petersen and A. Machiavelli and J. Widder and H.
                          Nina and P. Debruyne and I. Petrov and V. Ramljak and M.
                          Krini and T. Kazda and H. Pappot and L. Pääbo and V.
                          Valvere and J. Mattson and A. Bredart and C. Boulec and M.
                          Borinelli-Franzoi and E. Kldiashvili and C. Brandts and N.
                          Erickson and V. Arndt$^*$ and O. Balaoura and H. Orsolya and
                          C. Donohoe and A. Rizzo and A. Pace and S. Lejniece and A.
                          Dulskas and V. Pogonet and L. van de Poll and M. G. Guren
                          and I. Ługowska and M. Litwiniuk and M. J. Bento and T.
                          Ciuleanu and M. Mitrić and I. Ratosa and M. Chovanec and M.
                          Vieito and H. Aguilar and E. Ruiz and K. Ahlberg and E. T.
                          Simsek and M. Gumus and I. Minnée-van Braak and C. Higgins
                          and L. Pinnavaia and C. Dantas and T. Kalmi and Á. Martin},
      title        = {{S}ystematic review of the needs and health-related quality
                      of life domains relevant to people surviving cancer in
                      {E}urope.},
      journal      = {Quality of life research},
      volume       = {34},
      number       = {4},
      issn         = {0962-9343},
      address      = {Cham},
      publisher    = {Springer Nature Switzerland AG},
      reportid     = {DKFZ-2025-00213},
      pages        = {913-936},
      year         = {2025},
      note         = {2025 Apr;34(4):913-936},
      abstract     = {To systematically review qualitative studies on outcomes,
                      needs, experiences, preferences, concerns and health-related
                      quality of life (HRQoL) of people surviving cancer in Europe
                      in the last decade.Protocol registered (
                      https://www.crd.york.ac.uk/PROSPERO , ID575065).studies with
                      qualitative methods, constructs related to HRQoL, and adults
                      surviving cancer in Europe. The search was conducted in
                      PubMed and Scopus since 2013. Abstracts and full text were
                      revised, data extracted and study risk of bias assessed
                      independently by two researchers. The primary outcomes were
                      the themes arising from each study. A thematic analysis
                      stratified according to the study objective was undertaken
                      by grouping themes into categories.Of 18,256 articles
                      identified, 43 fulfilled the inclusion criteria: 16 studies
                      with a generic objective and 27 with specific objectives.
                      Seven categories (57 themes) emerged from the studies with a
                      generic focus: Clinical Management (n = 16), Symptoms and
                      Physical Function (n = 5), Psychological Function (n = 21),
                      Social Function (n = 18), HRQoL (n = 3), Life Disruption (n
                      = 6), and Individual Factors (n = 1). The 12 studies focused
                      on treatment and care experiences stand out among those with
                      specific objectives, with most themes fitting into the same
                      seven categories.Results clearly showed the predominance of
                      the social and psychological function domains over physical
                      domains among people surviving cancer, additionally
                      identifying specific needs in clinical management, such as
                      information and communication, and relationship with and
                      support from professionals. Therefore, these aspects should
                      be incorporated into the evaluation of patient-centred
                      initiatives for people surviving cancer.only two databases
                      were searched, and most European countries were not
                      represented.},
      subtyp        = {Review Article},
      keywords     = {Cancer survivors (Other) / Qualitative research (Other) /
                      Quality of life (Other) / Systematic review (Other)},
      cin          = {C071},
      ddc          = {100},
      cid          = {I:(DE-He78)C071-20160331},
      pnm          = {313 - Krebsrisikofaktoren und Prävention (POF4-313)},
      pid          = {G:(DE-HGF)POF4-313},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:39847267},
      doi          = {10.1007/s11136-024-03884-w},
      url          = {https://inrepo02.dkfz.de/record/298200},
}