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@ARTICLE{Pham:300250,
      author       = {P. D. Pham$^*$ and J. Ubels$^*$ and R. Eckford$^*$ and M.
                      Schlander$^*$},
      title        = {{M}easuring the {S}ocioeconomic {I}mpact of {C}ancer: {A}
                      {S}ystematic {R}eview and {S}tandardized {A}ssessment of
                      {P}atient-{R}eported {O}utcomes ({PRO}) {I}nstruments.},
      journal      = {PharmacoEconomics - open},
      volume       = {9},
      number       = {4},
      issn         = {2509-4262},
      address      = {[Cham]},
      publisher    = {Springer International Publishing},
      reportid     = {DKFZ-2025-00711},
      pages        = {519-539},
      year         = {2025},
      note         = {#EA:C100#LA:C100# / 2025 Jul;9(4):519-539},
      abstract     = {A number of instruments have been developed to measure the
                      socioeconomic impact (SEI) of cancer. A standardized
                      comparison of the quality and content validity of these
                      instruments is lacking. This study aimed to (1) conduct a
                      standardized assessment of the quality of SEI instruments
                      and (2) assess the content validity of these instruments
                      using the conceptual framework developed by the Organization
                      of European Cancer Institutes (OECI) for SEI analysis.We
                      identified articles measuring the SEI of cancer with ad hoc
                      and/or validated instruments from an existing database.
                      These articles were the initial pearls in a systematic
                      review of published articles that applied and validated
                      these instruments using the pearl-growing search strategy in
                      PubMed, Web of Science, and Google Scholar databases. The
                      Evaluating the Measurement of Patient-Reported Outcomes
                      (EMPRO) tool was utilized to provide quantitative assessment
                      and comparison of the quality of identified instruments. To
                      examine content validity, we allocated each instrument's
                      items against the themes and sub-themes of the established
                      conceptual framework for SEI analysis.We identified and
                      investigated 21 validation studies using nine original
                      instruments. The number of articles varied significantly
                      among the identified instruments. The COmprehensive Score
                      for financial Toxicity (COST) instrument was the most
                      frequently used, validated in ten different settings,
                      whereas some newer instruments have not been applied yet.
                      This variation resulted in significant differences in EMPRO
                      overall scores among these instruments. Regarding content
                      validity, we found that not all themes of the OECI framework
                      were covered by the content of the instruments.The quality
                      and the application of instruments measuring the SEI of
                      cancer varied significantly. The content of the instruments
                      seems not to cover all related themes of the applied OECI
                      framework in this study. Further studies are warranted to
                      confirm the quality and content validity of the instruments
                      measuring the SEI of cancer.},
      subtyp        = {Review Article},
      cin          = {C100},
      ddc          = {610},
      cid          = {I:(DE-He78)C100-20160331},
      pnm          = {313 - Krebsrisikofaktoren und Prävention (POF4-313)},
      pid          = {G:(DE-HGF)POF4-313},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:40180755},
      doi          = {DOI:10.1007/s41669-025-00568-0},
      url          = {https://inrepo02.dkfz.de/record/300250},
}