TY - JOUR
AU - Achatz, Maria Isabel
AU - Villani, Anita
AU - Bertuch, Alison A
AU - Bougeard, Gaëlle
AU - Chang, Vivian Y
AU - Doria, Andrea S
AU - Gallinger, Bailey
AU - Godley, Lucy A
AU - Greer, Mary-Louise C
AU - Kamihara, Junne
AU - Khincha, Payal P
AU - Kohlmann, Wendy K
AU - Kratz, Christian P
AU - MacFarland, Suzanne P
AU - Maese, Luke D
AU - Maxwell, Kara N
AU - Mitchell, Sarah G
AU - Nakano, Yoshiko
AU - Pfister, Stefan
AU - Wasserman, Jonathan D
AU - Woodward, Emma R
AU - Garber, Judy E
AU - Malkin, David
TI - Update on Cancer Screening Recommendations for Individuals with Li-Fraumeni Syndrome.
JO - Clinical cancer research
VL - 31
IS - 10
SN - 1078-0432
CY - Philadelphia, Pa. [u.a.]
PB - AACR
M1 - DKFZ-2025-00772
SP - 1831-1840
PY - 2025
N1 - 2025 May 15;31(10):1831-1840 / Perspective
AB - Li-Fraumeni syndrome (LFS) is an autosomal dominant cancer predisposition condition characterized by a high lifetime risk for a wide spectrum of malignancies associated with germline pathogenic/likely pathogenic (P/LP) variants in the TP53 tumor suppressor gene. Secondary malignant neoplasms are particularly common. Early cancer detection through surveillance enables early intervention and leads to improved clinical outcomes with reduced tumor-related mortality and treatment-related morbidity. Since the 2017 publication of LFS tumor surveillance guidelines from the inaugural AACR Childhood Cancer Predisposition Workshop, understanding the genotype:phenotype relationships in LFS have evolved, and adaptations of the guidelines have been implemented in institutions worldwide. The 'Toronto Protocol' remains the current standard for life-long surveillance; however, as outlined in this Perspective, modifications should be considered as to the use of certain modalities to target organs in an age-dependent manner. The Working Group's recommendations have also been extended to include a more detailed outline for surveillance in the adult TP53 P/LP variant carrier population based on the recognition that early education of both practitioners and patients on what to expect after the transition from childhood/adolescence to young adulthood is important in preparing them for changes in surveillance strategies. In this perspective, we provide an up-to-date clinical overview of LFS, and present our updated consensus tumor surveillance recommendations from the 2023 AACR Childhood Cancer Predisposition Workshop.
LB - PUB:(DE-HGF)16
C6 - pmid:40072304
DO - DOI:10.1158/1078-0432.CCR-24-3301
UR - https://inrepo02.dkfz.de/record/300326
ER -