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@ARTICLE{Xu:301725,
      author       = {K. Xu and C. Flock and K. Kaunath and N. Schmitt and C.
                      Bienen and J. Walther and J. Robl and K. Mehlis and A.
                      Züger and E. Klein and J. Winnefeld and M. Kecht and D.
                      Jäger$^*$ and P. Hoffmeister-Wittmann and G. M. Haag$^*$
                      and F. Pawlowski and E. Winkler and T. J. Bugaj and B. C.
                      Köhler$^*$},
      title        = {{O}ptimization of multiprofessional care for young
                      colorectal cancer patients: a qualitative {S}tudy.},
      journal      = {The oncologist},
      volume       = {30},
      number       = {5},
      issn         = {1083-7159},
      address      = {Oxford},
      publisher    = {Oxford University Press},
      reportid     = {DKFZ-2025-01117},
      pages        = {oyaf082},
      year         = {2025},
      abstract     = {The incidence of colorectal carcinoma (CRC) in patients
                      ≤50 (early-onset-CRC, EOCRC) years is increasing. Given
                      their different phase of life, younger individuals may face
                      specific challenges in terms of body image, professional
                      life, and psychosocial support. However, tailored programs
                      for EOCRC patients are lacking in Germany. JUMP-START, a
                      prospective study at the National Center for Tumor Diseases
                      (NCT) Heidelberg in collaboration with the AIO
                      (Arbeitsgemeinschaft internistische Onkologie) and the
                      foundation for young adults with cancer in Germany aims to
                      identify the specific needs of EOCRC patients and improve
                      multiprofessional care.Semi-structured interviews were
                      conducted until content saturation, based on an interview
                      guide focused on challenges related to diagnosis,
                      utilization of support programs, and unmet needs. The
                      interview guide was developed in an expert and patient
                      panelist discussion. Qualitative analysis was performed with
                      MAXQDA, using a content structuring qualitative content
                      analysis according to Kuckartz.Forty-three EOCRC patients
                      were screened, and 14 participants were interviewed at NCT
                      Heidelberg between October 2023 and January 2024. Three main
                      themes emerged: (1) The impact of CRC diagnosis at an early
                      age on psychological and physical health, daily routine, and
                      future perspectives, (2) Experiences with care service
                      access and utility, and (3) Expectations for a
                      multiprofessional care at a dedicated EOCRC center.EOCRC
                      patients highlighted various age-group-specific challenges
                      related to diagnosis and treatment. Tailored
                      multiprofessional programs may optimize care for EOCRC
                      patients.},
      keywords     = {Humans / Colorectal Neoplasms: psychology / Colorectal
                      Neoplasms: therapy / Colorectal Neoplasms: epidemiology /
                      Colorectal Neoplasms: diagnosis / Female / Male /
                      Qualitative Research / Adult / Middle Aged / Prospective
                      Studies / Germany: epidemiology / early-onset colorectal
                      cancer (Other) / multiprofessional care (Other) /
                      prospective study (Other) / psychosocial oncology (Other) /
                      qualitative interview study (Other) / young adults (Other)},
      cin          = {D120 / HD01},
      ddc          = {610},
      cid          = {I:(DE-He78)D120-20160331 / I:(DE-He78)HD01-20160331},
      pnm          = {314 - Immunologie und Krebs (POF4-314)},
      pid          = {G:(DE-HGF)POF4-314},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:40421958},
      pmc          = {pmc:PMC12107544},
      doi          = {10.1093/oncolo/oyaf082},
      url          = {https://inrepo02.dkfz.de/record/301725},
}