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000309879 1001_ $$00000-0001-8005-8760$$aMcCrary, J Matt$$b0
000309879 245__ $$aPriority European strategies for sustainable access to high-quality genetic counselling in cancer: A Delphi study.
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000309879 520__ $$aEurope's Beating Cancer Plan is a substantial European Union (EU) investment into cancer prevention and treatment. Integration of genetic services towards personalised cancer prevention and care is a flagship of this plan. Genetic counselling is critical to this integration, facilitating informed patient decision making and improved clinical management. However, growing demands for genetic testing and concurrently increasing workforce shortages necessitate new strategies to equitably ensure sustainable access to counselling across the EU. This project aimed to inform future European activities by identifying priority European strategies for addressing common European genetic literacy, workforce, and reimbursement barriers to genetic counselling in cancer noted in prior work. A Delphi survey was conducted, with genetics, oncology, and patient stakeholders invited from all EU Member States. The response rate was 62% (124 total invitations). Over three phases, 77 participants - 28 geneticists; 14 oncologists; 18 genetic counsellors; 16 patient representatives; 1 otherwise qualified expert - rated 19 strategies according to their Importance, Urgency, and Feasibility and selected their top three priority strategies. Five strategies met pre-defined consensus thresholds and received a clear plurality of priority ratings: (1) EU-wide genetic counsellor recognition; (2) Including genetics expertise in oncology guideline creation; (3) Shared EU genetic counsellor registration/education with legal weight; (4) Mandatory counselling reimbursement when clinical guidelines are met; (5) Mandatory inclusion of genetics in oncology fellowship/continuing education. Results provide a roadmap of European actions which promise to sustainably improve access to genetic counselling in cancer care. Upcoming and ongoing EU projects promise to advance their implementation.
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000309879 7001_ $$aVan Valckenborgh, Els$$b1
000309879 7001_ $$aHorgan, Denis$$b2
000309879 7001_ $$aAleksandrova, Evgenia$$b3
000309879 7001_ $$aBargou, Ralf$$b4
000309879 7001_ $$aBehulova, Regina Lohajova$$b5
000309879 7001_ $$aBelina, Ivica$$b6
000309879 7001_ $$aBøhme, Ann Liza Egesberg$$b7
000309879 7001_ $$aBrunet, Joan$$b8
000309879 7001_ $$aBurada, Florin$$b9
000309879 7001_ $$00000-0001-7554-4625$$aChirita-Emandi, Adela$$b10
000309879 7001_ $$00000-0002-3038-7547$$aCiuca, Andrada$$b11
000309879 7001_ $$00000-0001-9146-9346$$aColas, Chrystelle$$b12
000309879 7001_ $$00000-0001-5316-7574$$aConstantinidou, Anastasia$$b13
000309879 7001_ $$aCurca, Razvan-Ovidiu$$b14
000309879 7001_ $$aCursaru, Viorica$$b15
000309879 7001_ $$aDalmas, Miriam$$b16
000309879 7001_ $$00000-0003-0887-2973$$aDaneberga, Zanda$$b17
000309879 7001_ $$ade Azambuja, Evandro$$b18
000309879 7001_ $$00000-0003-3898-073X$$aDe Pauw, Antoine$$b19
000309879 7001_ $$00000-0001-9410-8941$$aDe Putter, Robin$$b20
000309879 7001_ $$aDelikurt-Tuncalp, Turem$$b21
000309879 7001_ $$aDonnelly, Deirdre$$b22
000309879 7001_ $$00000-0002-5589-3622$$aEhrencrona, Hans$$b23
000309879 7001_ $$aForetova, Lenka$$b24
000309879 7001_ $$aGalli, Fabrizia$$b25
000309879 7001_ $$00000-0002-7410-8351$$aGenuardi, Maurizio$$b26
000309879 7001_ $$aGiles, Rachel$$b27
000309879 7001_ $$aGrima, Claire$$b28
000309879 7001_ $$aJanavičius, Ramūnas$$b29
000309879 7001_ $$aKääriäinen, Helena$$b30
000309879 7001_ $$00000-0002-8753-8238$$aKlink, Barbara$$b31
000309879 7001_ $$00000-0003-0605-2592$$aKrajc, Mateja$$b32
000309879 7001_ $$aKufel-Grabowska, Joanna$$b33
000309879 7001_ $$aLace, Baiba$$b34
000309879 7001_ $$00000-0001-7616-5440$$aLeitsalu, Liis$$b35
000309879 7001_ $$aLe Tourneau, Christophe$$b36
000309879 7001_ $$aLodahl, Marianne$$b37
000309879 7001_ $$00000-0003-1992-1654$$aMari, Francesca$$b38
000309879 7001_ $$00000-0001-5144-1285$$aMatos, Erika$$b39
000309879 7001_ $$00000-0002-4043-3279$$aMazzarella, Luca$$b40
000309879 7001_ $$aMilagre, Tamara Hussong$$b41
000309879 7001_ $$aMistrik, Martin$$b42
000309879 7001_ $$aMoss, Barbara$$b43
000309879 7001_ $$aNolan, Amy$$b44
000309879 7001_ $$aO'Shea, Rosie$$b45
000309879 7001_ $$00000-0002-6535-4315$$aPaneque, Milena$$b46
000309879 7001_ $$00000-0001-7506-674X$$aPatócs, Attila$$b47
000309879 7001_ $$aPestoff, Rebecka$$b48
000309879 7001_ $$aPoirel, Hélène A$$b49
000309879 7001_ $$aRisch, Martine$$b50
000309879 7001_ $$aRodrigues, Manuel$$b51
000309879 7001_ $$aRoetzer, Katharina M$$b52
000309879 7001_ $$aRos, Andrea$$b53
000309879 7001_ $$0P:(DE-HGF)0$$aSchröck, Evelin$$b54
000309879 7001_ $$00000-0002-2120-848X$$aSchwaninger, Gunda$$b55
000309879 7001_ $$aSlámová, Lucie$$b56
000309879 7001_ $$aStamatopoulos, Kostas$$b57
000309879 7001_ $$aStrang-Karlsson, Sonja$$b58
000309879 7001_ $$00000-0001-8803-646X$$aSzczałuba, Krzysztof$$b59
000309879 7001_ $$aSzymczak, Virginie$$b60
000309879 7001_ $$aTheis, Philippe$$b61
000309879 7001_ $$aTurner, Jacqueline$$b62
000309879 7001_ $$aValcina, Olga$$b63
000309879 7001_ $$aVella, Christopher$$b64
000309879 7001_ $$avan Zelst-Stams, Wendy A G$$b65
000309879 7001_ $$aWadt, Karin A W$$b66
000309879 7001_ $$00000-0002-0046-8274$$aZschocke, Johannes$$b67
000309879 7001_ $$00000-0002-4971-3349$$aRonez, Joelle$$b68
000309879 7001_ $$00000-0001-6470-8612$$aRipperger, Tim$$b69
000309879 7001_ $$aVan Den Bulcke, Marc$$b70
000309879 7001_ $$00000-0002-1367-2725$$aBergmann, Anke Katharina$$b71
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