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@ARTICLE{Pauge:309935,
      author       = {S. Pauge and A. Züger$^*$ and L. Richter and V. Mathies
                      and B. Surmann and T. Ernst and N. Menold and W. Greiner and
                      E. Winkler$^*$ and K. Mehlis},
      title        = {{T}owards the assessment of financial distress among cancer
                      patients: a conceptual model of the financial effects of a
                      tumour disease.},
      journal      = {Supportive care in cancer},
      volume       = {34},
      number       = {3},
      issn         = {0941-4355},
      address      = {New York,NY},
      publisher    = {Springer},
      reportid     = {DKFZ-2026-00384},
      pages        = {190},
      year         = {2026},
      note         = {#NCTZFB9#},
      abstract     = {A conceptualisation of subjective financial distress as a
                      consequence of a cancer diagnosis and treatment is still
                      missing due to a lack of a comprehensive model accounting
                      for all relevant dimensions of financial effects of cancer
                      experienced by patients. Our goal was to derive a model for
                      the German healthcare system to shed light on the complex
                      process of financial effects of cancer.The model was
                      developed through systematic literature review and
                      qualitative studies, including interviews with 18 cancer
                      patients and a focus group with 4 social services
                      representatives. The iterative process of model development
                      was accompanied by an ongoing exchange in the
                      interdisciplinary research team.The developed model of
                      financial effects of cancer experienced by patients consists
                      of three dimensions: (1) actual and anticipated financial
                      disadvantages, (2) behavioural and cognitive coping
                      strategies, and (3) subjective financial distress
                      conceptualised as negative effects in different aspects of
                      daily living: employment, living situation, family, social
                      participation, health promoting lifestyle, additional
                      personally preferred treatments, navigating the health
                      system, and a further area so-called unspecific.Subjective
                      financial distress is driven by different financial effects
                      of cancer experienced by patients and is perceived as
                      negative in various aspects of daily living. While the
                      identified categories of daily living can be observed in
                      countries with universal healthcare coverage, the content
                      and degree of each subcategory depend on country-specific
                      characteristics. The introduced model can be used to inform
                      the development of a new patient-reported outcome measure
                      (PROM).NCT05319925 (registration date, 2022-06-01).},
      keywords     = {Humans / Neoplasms: economics / Neoplasms: psychology /
                      Neoplasms: therapy / Financial Stress: economics / Financial
                      Stress: psychology / Adaptation, Psychological / Male /
                      Female / Middle Aged / Germany / Focus Groups / Adult / Cost
                      of Illness / Aged / Activities of Daily Living / Qualitative
                      Research / Cancer (Other) / Conceptual model (Other) /
                      Coping strategies (Other) / Financial distress (Other) /
                      Financial toxicity (Other) / Patient-reported outcome
                      (Other) / Patients (Other) / Qualitative research (Other) /
                      Social services (Other)},
      cin          = {HD02},
      ddc          = {610},
      cid          = {I:(DE-He78)HD02-20160331},
      pnm          = {899 - ohne Topic (POF4-899)},
      pid          = {G:(DE-HGF)POF4-899},
      typ          = {PUB:(DE-HGF)16},
      pubmed       = {pmid:41677914},
      pmc          = {pmc:PMC12901272},
      doi          = {10.1007/s00520-026-10395-6},
      url          = {https://inrepo02.dkfz.de/record/309935},
}