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000309973 1001_ $$00000-0003-1690-631X$$aLizano-Barrantes, Catalina$$b0
000309973 245__ $$aNeeds and health-related quality of life domains relevant to people in Europe with advanced cancer in need of palliative care: a systematic review of qualitative research.
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000309973 520__ $$aThere is a need for a comprehensive summary of qualitative research on the health-related quality of life (HRQoL) of people with advanced cancer requiring palliative care. We aim to systematically review qualitative studies on outcomes, needs, experiences, preferences, concerns and HRQoL of people in Europe with advanced cancer requiring palliative care over the last decade.Protocol registered ( www.crd.york.ac.uk/PROSPERO , CRD42024575065). The search was conducted in PubMed and Scopus, from 2013 onward.qualitative studies addressing constructs related to the HRQoL of adults with cancer requiring palliative care in Europe. Abstracts and full texts were reviewed, data extracted, and risk of bias assessed independently by two researchers. A thematic analysis stratified by study objective was performed, grouping the emerging themes into categories (primary outcome).Of 18,256 articles identified, 20 fulfilled the inclusion criteria: 10 studies with a generic objective (whole palliative process or end-of-life phase), and 10 with specific focuses. Five categories (35 themes) emerged from the studies with generic focuses: 'Psychological Function' (n = 15), 'Clinical Management' (n = 8), 'Symptoms and Physical Function' (n = 6), 'Social Function' (n = 5), and 'End-of-life' (n = 1). Themes from the 7 studies focusing on treatment, services, and self-management also fitted into these categories, adding 'Spiritual Well-being'.These findings emphasise the predominance of the psychological function domain in cancer patients requiring palliative care, including cancer-related anxiety and distress, coping mechanisms, control and decision-making, and fearing and expecting death. Additionally, clinical management unmet needs were identified in health care, information and communication, and end-of-life settings (home vs. hospital).
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000309973 650_7 $$2Other$$aCancer
000309973 650_7 $$2Other$$aNeoplasms
000309973 650_7 $$2Other$$aPalliative care
000309973 650_7 $$2Other$$aQualitative research
000309973 650_7 $$2Other$$aQuality of life
000309973 650_7 $$2Other$$aSystematic review
000309973 650_2 $$2MeSH$$aHumans
000309973 650_2 $$2MeSH$$aPalliative Care: psychology
000309973 650_2 $$2MeSH$$aQuality of Life: psychology
000309973 650_2 $$2MeSH$$aQualitative Research
000309973 650_2 $$2MeSH$$aNeoplasms: psychology
000309973 650_2 $$2MeSH$$aNeoplasms: therapy
000309973 650_2 $$2MeSH$$aEurope
000309973 7001_ $$00000-0001-9595-0970$$aAmat-Fernandez, Clara$$b1
000309973 7001_ $$00000-0001-6193-0779$$aGarin, Olatz$$b2
000309973 7001_ $$00009-0004-7730-0658$$aLuer-Aguila, Ricardo$$b3
000309973 7001_ $$00000-0003-4982-5495$$aPardo, Yolanda$$b4
000309973 7001_ $$00000-0002-6814-7426$$aRojas-Concha, Leslye$$b5
000309973 7001_ $$0P:(DE-He78)24fe6057396bec79d2638615b12eb989$$aThong, Melissa$$b6$$udkfz
000309973 7001_ $$00000-0001-5179-104X$$aApolone, Giovanni$$b7
000309973 7001_ $$00000-0003-3905-1289$$aBrunelli, Cinzia$$b8
000309973 7001_ $$00000-0002-0375-6204$$aCaraceni, Augusto$$b9
000309973 7001_ $$aCouespel, Norbert$$b10
000309973 7001_ $$aBos, Nanne$$b11
000309973 7001_ $$aGroenvold, Mogens$$b12
000309973 7001_ $$aKaasa, Stein$$b13
000309973 7001_ $$00000-0003-2851-8605$$aCiliberto, Gennaro$$b14
000309973 7001_ $$00000-0001-7554-449X$$aLombardo, Claudio$$b15
000309973 7001_ $$aPietrobon, Ricardo$$b16
000309973 7001_ $$00000-0002-4843-4663$$aPravettoni, Gabriella$$b17
000309973 7001_ $$00009-0007-8222-0961$$aSirven, Aude$$b18
000309973 7001_ $$00000-0003-1259-649X$$aVachon, Hugo$$b19
000309973 7001_ $$00000-0002-9142-1227$$aGilbert, Alexandra$$b20
000309973 7001_ $$00000-0003-1899-5942$$aVelikova, Galina$$b21
000309973 7001_ $$00000-0001-9867-7391$$aFerrer, Montse$$b22
000309973 7001_ $$aGroup, EUonQoL Working$$b23$$eCollaboration Author
000309973 7001_ $$aCiuleanu, Tudor$$b24$$eContributor
000309973 7001_ $$aMitrić, Milana$$b25$$eContributor
000309973 7001_ $$aRatosa, Ivica$$b26$$eContributor
000309973 7001_ $$aChovanec, Michal$$b27$$eContributor
000309973 7001_ $$aVieito, Maria$$b28$$eContributor
000309973 7001_ $$aAguilar, Héctor$$b29$$eContributor
000309973 7001_ $$aRuiz, Eva$$b30$$eContributor
000309973 7001_ $$aAhlberg, Karin$$b31$$eContributor
000309973 7001_ $$aSimsek, Eda Tanrikulu$$b32$$eContributor
000309973 7001_ $$aGumus, Mahmut$$b33$$eContributor
000309973 7001_ $$avan Braak, Inke$$b34$$eContributor
000309973 7001_ $$aHiggins, Caitriona$$b35$$eContributor
000309973 7001_ $$aPinnavaia, Laura$$b36$$eContributor
000309973 7001_ $$aDantas, Carina$$b37$$eContributor
000309973 7001_ $$aKalmi, Tapani$$b38$$eContributor
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